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"Epilepsy, so what?" – a new campaign to normalise the disease among adolescents

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    UCB has teamed up with FEDE, the Spanish epilepsy federation, to raise awareness about epilepsy among the adolescent population. The campaign, delivered through the Living with Epilepsy (Vivir Con Epilepsia) platform, aims to inform young people about the condition in a language they understand and through a channel that is familiar to them.

    Entitled ‘Epilepsy, so what?’, the campaign features a video of a well-known Spanish YouTuber named Kaos discussing epilepsy with a girl living with the condition. Together, they aim to address some of the myths about epilepsy and seizures, helping to reduce the stigma associated with the disease.



    The video is already a hit: more than 100,000 people in Spain have viewed the video and 14,000 have liked it on YouTube.

    The campaign also includes a contest for young people aged 13 to 24 years attending school or university. Participants can find out more about the disease before creating their own video to explain what they have learned or tell a story based on personal experience of epilepsy. A prize of €1,000 is on offer for the best video.

    The ‘Epilepsy, so what?’ initiative builds on a school-based campaign designed for younger children – aged 7-13 years old. ‘Knowing Epilepsy Makes us Equal’ has been delivered to more than 100,000 students in classrooms around Spain.

    Around half of all newly-diagnosed cases of epilepsy are among children or adolescents. Most can, with the right treatment, lead a totally normal life. By educating a new generation about epilepsy, UCB and FEDE hope to normalise the condition and the improve the lives of those affected.

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