324 Likes Understanding More About the Lived Experiences of People Living with Myasthenia Gravis Posted by Daphne Teo, US Communications 27-Jun-2023 At UCB, our work is rooted in a culture of dialogue, collaboration, and respect. These tenets allow us to forge bonds with the people we serve and those who know their challenges best, ensuring that our work can have the greatest possible impact. During Myasthenia Gravis Awareness Month, UCB recommits to addressing the challenges of the myasthenia gravis community by continuing to invest in meaningful partnerships to deliver valuable solutions for the patients we serve. Part of that partnership and collaboration for UCB is showing up: being there to listen to patients, to not only learn more about them but also from them. UCB is there to amplify the voices of patients, so that there can be greater understanding and awareness for those living with rare conditions, such as myasthenia gravis. Kimberly Moran, Ph.D., Head of U.S. Rare Disease, recently had a chance to have a Q&A with Alexis Rodriguez, who was diagnosed with myasthenia gravis 25 years ago. She listened to Alexis about how the journey living with a rare disease is complex and how every patient is different. They discussed how people living with myasthenia gravis are seeking more resources and education on this rare condition. Leave a Comment You must have JavaScript enabled to use this form. Please enter your name Please enter your email address By submitting your personal data, you agree with UCB's Data Privacy Policy. Furthermore, for more information on the terms of use of this website please visit our Legal Notice, accessible here. CAPTCHA Get new captcha! What code is in the image? Enter the characters shown in the image. Leave this field blank