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Parkinson’s: it’s about more than motion

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    When people think of Parkinson’s disease the first symptoms that come to mind are often related to movement: difficulties walking and talking, or the characteristic tremor that people with Parkinson’s often live with.

    But Parkinson’s comes with a much broader range of symptoms, and improving the lives of those affected by the disease requires a holistic appreciation of the condition.

    This was one of the messages that UCB brought to the American Academy of Neurology (AAN) 2014 Annual Meeting in Philadelphia, (April 26th - May 3rd).

    UCB had a strong presence at the event which was attended by over 11,000 international neurologists and neuroscience professionals. It was an opportunity for our company to update the neurology community with the latest data on our products as well as on what we are doing to support the patient community.

    At our Parkinson’s More than Motion™ booth, UCB highlighted our US initiative designed to educate people living with PD and caregivers that the disease is more than a movement disorder. This message is carried through a variety of multi-media and social channels including the community’s Facebook™ page, the More Than Motion™ magazine, appearances at PD advocacy events and medical meetings, a reality video series documenting the lives of PD patients, and the Parkinson’s Well-Being Map™.

    The Parkinson’s Well-Being Map™ is a valuable tool that helps patients track their symptoms and prepare for consultations with their healthcare providers. It offers health professionals insights into the full range of their patient’s condition.

    Patients can chart the severity of eight major symptom types and observe how these change over time. Motor symptoms are included, along with sleep disturbance, digestion and the gut, pain, and memory problems. This offers a more complete picture of how Parkinson’s disease is impacting the patient’s life.

    The Parkinson’s Well-Being Map™ can now be downloaded and printed via the UCB website and is available in several languages. Users can download a PDF copy of the map which can be completed by hand, or they can complete an online version and save it to their personal computer.

    If you are affected by Parkinson’s disease, try the Parkinson’s Well-Being Map™ for yourself now or share it with anyone you think may benefit from this free tool.

    We hope that by sharing the Parkinson’s Well-Being Map™ online and raising awareness of it among experts at the AAN, a growing number of patients will benefit.

    More Than Motion™ and Parkinson’s Well-Being Map™ are trademarks of the UCB Group of Companies.  

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