Parkinson’s disease, you and UCB
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15-Nov-2012
You’ll find more details on Parkinson’s disease (PD), its symptoms and diagnosis on our dedicated disease page. There is also a range of articles in our UCB.com Magazine which can help to guide you through our latest work in this area and connect you to practical tools for managing PD as well as to communities of people with the disease.
UCB values patient organisations and we play our part by supporting the important work that they do. This ranges from providing educational grants to collaborating on specific projects designed to make patients’ lives better.
Working with the European Parkinson’s Disease Association, the Cure Parkinson’s Trust and the Spanish Federation of Parkinson’s Disease, UCB helped to develop the Parkinson’s Well-Being Map™. This tool, now freely available online, allows people with Parkinson’s to track their motor and underlying symptoms, and to communicate their health status with their health care teams.
Among the resources we have developed is Parkinson’s Voices which gives patients and their families a platform for sharing their stories and discussing the daily challenges they face. Part of this project is "Today I will...", an initiative that allows people affected by PD to share their goals. These short pledges can range from long-term ambitions to everyday targets such as going for a walk, writing a letter or spending time with family. Take a look and feel free to share your own goals today.
Sharing experiences with other people who live with PD can be a great source of support. The More Than Motion online community for people with Parkinson’s and their families in the US – which includes a Facebook page – is another example of how interactive online tools can help to bring together people with Parkinson’s to exchange stories and resources.
We will continue to work with the PD community to provide resources that help them get the support they need.
UCB values patient organisations and we play our part by supporting the important work that they do. This ranges from providing educational grants to collaborating on specific projects designed to make patients’ lives better.
Working with the European Parkinson’s Disease Association, the Cure Parkinson’s Trust and the Spanish Federation of Parkinson’s Disease, UCB helped to develop the Parkinson’s Well-Being Map™. This tool, now freely available online, allows people with Parkinson’s to track their motor and underlying symptoms, and to communicate their health status with their health care teams.
Among the resources we have developed is Parkinson’s Voices which gives patients and their families a platform for sharing their stories and discussing the daily challenges they face. Part of this project is "Today I will...", an initiative that allows people affected by PD to share their goals. These short pledges can range from long-term ambitions to everyday targets such as going for a walk, writing a letter or spending time with family. Take a look and feel free to share your own goals today.
Sharing experiences with other people who live with PD can be a great source of support. The More Than Motion online community for people with Parkinson’s and their families in the US – which includes a Facebook page – is another example of how interactive online tools can help to bring together people with Parkinson’s to exchange stories and resources.
We will continue to work with the PD community to provide resources that help them get the support they need.
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