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Patients UCB Stories

Digital innovators rethink epilepsy care

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    At UCB we believe that the lives of people living with epilepsy can be improved through innovation.

    That can mean developing medicines that control seizures, exploring the frontiers of gene research or harnessing the power of supercomputers.

    There are no limits on innovation – it is about thinking big and collaborating with a broad coalition of partners.

    In keeping with this spirit of openness, we were inspired to create the 'Hack Epilepsy' initiative. 'Hackathons' are an increasingly popular way to apply fresh thinking and creative design to complex problems.

    This epilepsy hackathon, held simultaneously in Brussels and Atlanta from April 24 to April 26, has delivered a number of prototype digital solutions for epilepsy patients.

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    The goal of Hack Epilepsy was to come up with practical and workable prototypes that answer four broad challenges, including accessing effective support and reliable information, empowering people to talk about their epilepsy, and knowing what questions to ask following diagnosis.

    The event brought together developers, designers and digital experts, along with healthcare providers, people living with epilepsy, neurologists and entrepreneurs to imagine new ways of applying digital technologies that can make a real difference for the epilepsy community. The competition was judged by diverse juries in Atlanta and Brussels. Across both sites there were over 100 participants.

    Brussels
    1st place: Team Helpilepsy
    Personalised notification and detection system that can seek help from specific groups in a geolocalised environment and store all generated data

    2nd place: Team Interruptions    
    Portable, accessible epilepsy simulation experience

    3rd place: Team Aura
    Adaptive seizure alerts and fast context surveys for pattern recognition

    Atlanta
    1st place:  Team BioMarkEP
    Combining mobile technology, wearables and machine learning to discover quantitative biomarkers that could lead to early prediction of an oncoming seizure

    2nd place: Team Recover Epilepsy
    Mobile app for patients to create and deploy their own personalized post-seizure recovery plans and galvanize their care networks seamlessly

    3rd place: Team Neurish
    Social network that enables all epilepsy patients to identify and contact mentors, i.e. patients with similar seizure types who are living successfully with epilepsy.

    For details of the challenges presented at Hack Epilepsy and more information, go to www.hackepilepsy.com.

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