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Crohn's & Me is for people whose lives are affected by Crohn's disease - patients, friends, and family. It has helpful educational info and tips for living with Crohn's disease like information about diet, traveling ideas, videos from doctors and patients, and other resources. Members of the Crohn's & Me Community gain exclusive access to videos and a Crohn's Disease Tracker
Website Crohn's and Me
UCB and PatientsLikeMe, the leading online community for people with life-changing conditions, entered a strategic partnership in June 2009 to create an online, open epilepsy community that captures real-world experiences of people living with epilepsy in the U.S.
The platform was launched in January 2010 and designed to collect, analyse and reflect information received from people with epilepsy, regardless of their diagnosis, prognosis or treatment regimen. Participants record their real-time day-to-day progress in controlling their seizures and achieving their treatment goals, and share that with the community to help patients, caregivers, researchers and industry learn more about the disease.
Press release - June, 15, 2009
This website has been created for people who want to find out more about epilepsy and hear from people who have learnt to live well with epilepsy.
It is full of useful, expert information about epilepsy along with hints and tips on how to better manage your epilepsy. Lots of the advice comes directly from people with epilepsy, people who want to share their stories with you and assure you you are not alone.
Website Live Beyond Epilepsy
Dutch program : Leef met Epilepsie
German program : Epilepsie gut behandeln
Epilepsy Advocates are people living with epilepsy and caregivers who have refused to compromise and sought the best treatment for controlling their seizures with minimal side effects.
By sharing their personal success stories online and within local communities, Epilepsy Advocates strive to inspire people to interact with other people with epilepsy, learn from one another and make positive changes in each other's lives. It's their personal commitment to make a difference in their community and themselves.
Website Epilepsy Advocate
Seizure response dogs immediately change lives for their owners, but their extensive training can take up to 18 months.
That's why Canine Assistants work together with The Epilepsy Company™, UCB, Inc. in the training of every dog. Their partnership ensures that each dog gets the extensive training that it needs, and that more needs of the epilepsy community are met.
Read more about the canine assistants programme.
UCB, Inc. is committed to building the lives of US epilepsy patients and their family members/caregivers. This scholarship provides financial support for epilepsy patients or family members/caregivers who demonstrate academic and personal achievement. Since 2005 UCB, Inc. has awarded half a million dollars in scholarships.
The H.O.P.E. Mentoring Program (Helping Other People with Epilepsy) was created to allow people who live with epilepsy to educate others and share their experiences. This educational program trains people with epilepsy to be "patient educators" throughout the epilepsy and neurology communities.
UCB, Inc. supports the H.O.P.E. Mentoring Program, which is available through the Epilepsy Foundation. For more information about the H.O.P.E. Program, please visit:
Website Epilepsy foundation

